Shared Stories
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Staci D. My mother passed away of idiopathic pulmonary fibrosis a few days ago. She had it for a few years, but was misdiagnosed. If only I had gotten involved in her care sooner, maybe I could have helped.
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Rachel S. At the age of 4, I was diagnosed with juvenile rheumatoid arthritis. My parents and I were told that this disease generally presents itself in either of two forms: one that attacks primarily the joints or a systemic version that attacks the internal
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Pam C. I started coughing from what I thought was a virus in November 2011. It never went away.
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Ron S. Five years ago, I started noticing that I was a little short of breath for a man in his early 60s, but I contributed it to being a little out of shape.
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Robert W. I’m 89 years old and I developed a hacking cough when I was 88 years old, so I went on esbreit and had to stop because of side effects.
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Mike O. I was diagnosed with IPF December 2014, waiting on a double lung transplant list.
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Mike L. I was diagnosed in June of 2015. I am a 65 year old male. I have been on oxygen for 1 year. My mother died from the disease at the age of 79 in 2002.
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Me;isa K. My dad, David Joe Walker passed away from Pulmonary Fibrosis on April 16, 2019. He was diagnosed about four years ago. He was also a lung cancer survivor.
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Lisa C. Jeff was diagnosed with COPD in 2020. He had worked construction in paper mills and oil refineries for 38 years.
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Jim M. Hello my name is Jim Mcdonald, I'm 60 and along with my wife we live in Fort Worth, TX. I was diagnosed with UIP on biopsy which related to IPF at the pulmonologist office in 2014.
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Jim H. In 2013, I was diagnosed with a disease that has no determined cause or cure. My doctors told me that my lungs would deteriorate but they couldn’t predict at what rate. I was instructed to get my affairs in order and enjoy the rest of my very-limited
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Jane B. My name is Jane Berry. I am 78 years old and I have Ideopathic Pulmonary Fibrosis. I was first diagnosed years ago with COPD.
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James M.
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Dianne H. Pulmonary Fibrosis has affected my everyday life for almost five years.
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Dawn M. Thank you for allowing me to share my story. My mother had suffered for years with difficulties breathing. She was told she had asthma, and then sarcodosis.
