Shared Stories

Dianne H. Pulmonary Fibrosis has affected my everyday life for almost five years.

Brenda B. My mother died from pulmonary fibrosis in 2008. She was diagnosed and given five years but she lived eight.

Delores M. I was recently diagnosed with Pulmonary Fibrosis.

Debbie H. I am a Family Nurse Practitioner, diagnosed with NSIP for only two months and this has devastated my life in a short time period.

Gerardo M.

angela b.

Nicole D. My name is Nicole, I'm 22 and a recent college graduate. I am a former college cheerleader, an avid runner, a proud alumnus of a sorority, and a huge Cleveland sports fan. I also happen to only have 1 healthy lung.

Robin B. My mom was hospitalized with severe blood clots in her neck and arm. In the process of finding the cause, the doctors found a small nodule on her lungs.

Jim H. In 2013, I was diagnosed with a disease that has no determined cause or cure. My doctors told me that my lungs would deteriorate but they couldn’t predict at what rate. I was instructed to get my affairs in order and enjoy the rest of my very-limited

Dawn M. Thank you for allowing me to share my story. My mother had suffered for years with difficulties breathing. She was told she had asthma, and then sarcodosis. My folks moved from the Midwest to the southwest to retire as well as to help my mother breat

Barbara M. I had never heard of IPF until I was diagnosed in 2003. The first thing I did was look it up online. What a scary and depressing future the Internet told me I was facing—3 to 5 years to live.

Rachel S. At the age of 4, I was diagnosed with juvenile rheumatoid arthritis. My parents and I were told that this disease generally presents itself in either of two forms: one that attacks primarily the joints or a systemic version that attacks the internal

Mike O. I was diagnosed with IPF December 2014, waiting on a double lung transplant list.

Terril M. I come from a family scarred by IPF. I'm a nurse practitioner, who noticed clubbing of the fingers, when my dad, a lifelong smoker, was struggling to breath. I assumed he had COPD, but his doctor told him it was IPF. He died in 1998.

James M.